A toddler with a painful condition that makes his skin develop painful scales ‘like a fish’ has finally found relief – thanks to cannabis oil.
Carter Padelford, two, from Las Vegas, Nevada, was diagnosed with the rare genetic condition lamellar ichthyosis three days after he was born ‘as red as a tomato’ in November 2016.
The disorder affects one in 100,000 people in the U.S. and disrupts the normal formation of the outer layer of the skin, causing sufferers to develop dark, plate-like scales.
The tot’s tight red skin would often crack painfully and his body was unable to regulate his temperature as he could not sweat.
His parents Shai-Anne Sifford and Zach Padelford, both 21, were forced to slather him with coconut oil and shea butter and give him two oatmeal baths a day to soothe him.
They would also have to exfoliate his scales away every three days – a painful process which they would dread.
‘When he was born, his skin was as red as a tomato and so tight to touch,’ his mom recalled. ‘It looked painful. He couldn’t even close his eyes. ‘He was diagnosed with lamellar ichthyosis three days later.
‘Basically it means that his skin builds up into scales like a fish and it limits his ability to move. It stops his ability to sweat which means he’s intolerant to temperature.
‘Babies with this are at a greater risk of Sudden Adult Death Syndrome (SIDS) because if they get too warm they can suffocate,’ she added.
‘He couldn’t even close his eyes. ‘I was using a no-touch thermometer about eight times a day to keep his temperature stable.’
Shai-Anne tried to treat the condition with the medication AmLactin, which was recommended by doctors, but it didn’t seem to work.
‘Doctors didn’t offer us much advice or help. I feel they neglected us because they didn’t know what was going on,’ Shai-Anne said. ‘They told me to keep him covered and to avoid baths and to come back in two years when he was two.
‘It was traumatizing. There were no road signs and so few treatment options,’ she continued. ‘For a while we used to do two oatmeal baths a day with baking powder which helped disinfect his skin and exfoliating him every few days.
‘I used to spend my days just lathering him with coconut oils and homemade organic creams.’
After reading an article on the impact cannabis oils can have on chronic skin conditions, Shai-Anne, a medicinal marijuana user, decided to try the oil on Carter in August 2017.
The use of cannabis oil is legal in Nevada where the family live, but it is currently only available to people over the age of 21.
‘I’m a medicinal user so I decided to try it,’ she said. ‘I began to put it into the homemade creams with shea butter and essential oils that I was already making.’
The parents say Carter is now a completely different toddler than he was before the treatment and his scales have almost completely disappeared.
‘Seven months later he doesn’t even look like the same child,’ Shai-Anne said. ‘He used to have no hair because of his scales but now his hair is starting to grow.
‘He used to have open sores that would be bleeding, but his skin has almost completely cleared up.’
Carter’s skin no longer splits and cracks, and for the first time, he is able to sweat like a normal child.
‘His progress has been insane,’ Shai-Anne added. ‘His eyes could never close completely but since I’ve been using the oil on his eyelids they are almost closing all the way.’
The mom said she fears Carter’s condition would regress if she were to stop using the oil, and she admitted that she feels let down by the medical system.
‘The standard way to treat this is a drug called AmLactin, which is a lactic acid that burns away the top layers of skin,’ she said.
‘Other patients I’ve met with this disorder say it feels like they’ve been put in an oven when they apply it.
‘I’ve tried it for Carter but it just wasn’t working. Other than that we’ve had no support from doctors in terms of a treatment for this. ‘I feel without the cannabis oil, he wouldn’t have a life.’
Shai-Anne said other sufferers she has met have been blown away by his pictures and his progress, so much so that they are thinking about trying it themselves.
‘I just want him to have a normal life, and this is the only treatment that has offered him the chance at that,’ she said of her son.
Source: DailyMail.com
